Who We Are

Our Goals:

  • Maintain and continually improve our website as a resource Hub for Lyme Patients and their families

  • Advocate for improved treatment of Lyme in Nova Scotia, including chronic Lyme, both by primary care practitioners, and pharmacists

  • Support Lyme Patients in self advocacy

  • Create awareness of complexity of treatment including preventing herxing

Many Lyme sufferers experience medical gaslighting on their journey, and we are trying to create a world where this condition is taken seriously, treated urgently and patients are treated with respect.

This medical gaslighting is a huge part of why many Lyme patients struggle with their mental health, with suicide risks doubling after a Lyme diagnosis.

Our Mission: To support, educate, and advocate for Nova Scotians by fostering awareness, providing resources, and promoting meaningful change in Lyme disease prevention and education through collaboration with Nova Scotia Health and other partners.

Our Vision: To be the trusted resource for Nova Scotians, fostering a comprehensive understanding of Lyme disease, prioritizing prevention through education, and expanding knowledge, awareness, and access to resources across the province.


Our Story

Founded in 2025, the first Board included Lisa Learning as President; Donna Lugar as Vice-President; Alexandria Brinkhurst-Bauer as Secretary; Léna de la Loire (Barbrick) as Treasurer; and Claudette Garland & Scott Wilson as Directors.

After years of support groups and advocacy, the group felt a formal non-profit association was needed to advance the work.